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February is Rare Disease Month. A month to listen more closely. To stand stronger in advocacy. To amplify the voices of children, young people, and families whose experiences are too often unheard.

Rare diseases may be individually uncommon — but collectively, they affect millions. Behind every diagnosis is a story of resilience, complexity, and courage.

It is in this spirit that we are proud to announce 2026 — a event bringing together researchers, clinicians, young people, families, policymakers, and advocates to advance rare disease research, education, and innovation.
📅 Saturday, 28 March 2026
⏰ 09:00 – 17:00
📍 University College Dublin (UCD)

🔗 Please click the registration link:

Call for Posters and Lightning Presentations: please click here.

This year’s theme:
“Voices Rarely Heard: Empowering Young People Living with Rare Diseases — From Lived Experience to Leadership.”

The programme features keynote speakers and , . We are offering interactive workshops, a young people’s forum, caregiver sessions, a “Thesis in 3 Minutes” track, and an interactive panel on the future of rare disease research and education (see programme details attached)

RAINFEST 2026 is proudly sponsored by , supported by and , reflecting our strong cross-border collaboration.
🔗 Please click the registration link:
Or scan the QR code in the programme to register.


Join us as we strengthen partnerships, amplify lived experience, and shape the future of rare disease research across Ireland and beyond.